Yoav is 9. It’s the 90th Minute to Save His Life.

Yoav is a sweet, smart, and joyful 9-year-old boy. Like every child, he dreams of playing soccer, running freely, and growing up strong.

“I used to play here. Today, I can only watch ” Yoav says in the video.

But Yoav was born with Duchenne-a severe, progressive muscle-wasting disease. His case is exceptionally rare: Yoav carries a unique genetic mutation, and he is the only child in the world known to suffer from this specific type of Duchenne.

When Yoav was 4, on his father’s 36th birthday, his family received the diagnosis that changed their lives forever. The clock started ticking.

From that moment on, Omer, Yoav’s father, made one clear, non-negotiable promise: To do everything possible to save his son’s life.

Omer left his job, founded the nonprofit organization “Winning Duchenne (R.A)”,” and set out on an extraordinary journey. He met with hundreds of scientists, physicians, and pharmaceutical companies in Israel and around the globe. The conclusion was clear-and heartbreaking: Because Yoav’s mutation is unique, the harmaceutical industry has no financial incentive to create a personalized drug. It is simply not profitable for them. And so, for Yoav, there is no off-the-shelf treatment. The only way to cure him is to develop a personalized therapy tailored specifically to his DNA.

“When Yoav was four years old, I realized I had to leave everything behind and dedicate my life to saving him ” says Omer, Yoav’s father, in the video.

The good news is-science is finally here. In recent years, groundbreaking technology has matured. It has already shown impressive results: restoring dystrophin production and improving key medical markers. For the first time, the stars have aligned: The technology is ready. The team is ready. The cure is within reach.

But there is one painful reality: In Duchenne, Time is Muscle. Yoav and his family are in the most crucial race of their lives. Every day that passes causes irreversible damage. Yoav is already struggling to walk, stand, climb stairs, and perform simple daily tasks. If we do not act now, the window of opportunity will close.

“I’m in a race against time” says Omer, Yoav’s father, in the video.

To give Yoav a real chance to beat the disease-to turn this alignment into reality-he urgently needs 4 million NIS immediately, and a total of $3.5 million USD (approx. 12M NIS) over the coming year. This funding will allow us to stop the disease from progressing-while it is still possible.

That is why this campaign is launching now. For the first time, money is the only barrier-not science.

This campaign is not just about Yoav. It is a beacon of hope for other children with rare mutations who currently have no medical solution.

We invite you to join our team. Be part of a decisive moment where we can change the course of one child’s life-and potentially many others.

Yoav has no extra time. It is his 90th minute. And now-the ball is in our hands.

Please donate and help save his life

At the end of the video, Yoav says: “Now the ball is in your hands!”